Hello world! So what’s this all about?

September 18, 2008

It’s all about me frankly! well my dodgy hips to be perfectly honest. I’m blogging for both selfish and alturistic reasons. The former to help me get things straight in my head – I’m one of those annoying people that thinks out loud and has to write things down to get them ‘out there’ so blogging seems like a way to do that. The latter is linked to my ‘thinking out loud’ in one respect – to save my lovely boyfriend, family and friends from boredom of me banging on about random things linked with Dysplasia. Such wonderful subjects have so far included; how long after surgery until I can go kickboxing?, do I have any cartiliage left?, will I be able to shower within the first few weeks after surgery?, and most importantly how long will it be until I’m able to to get naked and naughty with my man?!! I’m also hoping that this blog will help others out there that have Dysplasia and know nothing about it. Until 10 months ago I was one of those people, and finding other blogs and a great yahoo group for women with dysplasia has been both brilliant and terrifying! So there you have it, that’s what it’s all about.

Right then, here I am 30 years young and facing major surgery. Not by any means am I the only one with impending knife work, and I’m very lucky that I’ve nothing terminal, so it’s not the end of the world – at least not the end of the world as we currently know it!

I’ve had issues with my dodgy ball and socket joints for some time now, the current most prominent issue is my hips, I have Congenital Hip Dysplasia (CDH). This means the sockets that my femurs are supposed to sit in aren’t properly formed and are too shallow, so I have to have my acetabular chopped into bits and moved around to build real hip sockets. At least that’s my way of describing what is known as a Periacetabular Osteotomy. The real medical description can be found on a fabulously informative website – listed on the links page.

How did I get to this point?

 

Well I’ve had soreness and stiffness in my hip joints on and off for around 10 years, specifically my right hip. I first saw a doctor about it after the stiffness was so bad I was walking as though I was a 90 year old with severe arthritis.  After seeing a quack of a doctor who told me that at the age of 23 I did have arthritis and would have to spend the rest of my life taking pain killers I left the issue alone for a few years, and no I didn’t spend my time popping pills. For one thing they didn’t make much difference on the occasions when I was in pain, and I’m not one of those people that’s happy shoving medication down their throat at any given moment.

The occasional ibuprofen kept me fairly hobble free for a few years until around Easter 2007 when on hols after a 5km (very short and easy going) walk I was limping and hobbling my way round like the aforementioned little old lady. Not a happy bunny I went back to the docs (a different one) and got referred to the local hospital’s Orthapaedics department.  On arrival I had a couple of X-rays, and then sat down to wait for a consultant who then proceeded to bend and stretch my clicking hips at all sort of angles. Once he’d assessed me, we sat down for him to explain my options;

“There’s one of two things we can do for you”                                                                           
hmm brilliant, I thought, either tablets or physio, here it comes……..                                  
“We can either saw your pelvic bone or your femur” 
urm ok, not quite what I expected.

And there it was, the moment I discovered I have Dysplasia. That was nearly a year ago now, and I can’t really remember much of the conversation after that point. The consultant and I looked at my X-rays and he mentioned something called Periacetabular Osteotomy (PAO) of which I had no idea, so asked him to write it down for me and quite rightly he pointed out that I would ‘go home, look on the net, and scare yourself silly’. Oh how right he was. 

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