it’s been a while…

October 30, 2008

This weekend just gone my man and I went to my folks for some lovely home cooked grub (full roast if you must know- yummy too). Anywho after dinner my very ‘down with tha kids’ parents got us all playing on their new toy… a Wii, much to the interest of my little nannie who was a bemused and amused spectator throughout.  If you’re not familiar with this particular toy it’s great entertainment with interactive games aplenty.

We partook in Wii Sport – boxing, tennis, baseball, bowling and a coupla others, next we moved onto Wii fit. Part of which is a sensitive board which you stand on and it can work out all sorts of things about you that you’d rather not know – weight, balance and more worryingly your Wii fit age (whatever that might mean!). I’m apparently 12 yrs older than my real life age – blooming rudeness! The age calculation isn’t based on any cardio or strength level of fitness, but on your balance. Obviously with wonky hips I was off to a looser on that one from the off (at least that’s what I keep telling myself).   After the initial balance assessment the machine decided that I put most of my weight on my right side, and then mentioned something along the lines of ‘your pelvis may be out of alignment’ NO SH*T SHERLOCK!!  Any way after this amazing revelation we all continued onto the balance games – thinking it prudent not to shake up the roast dinner too soon with aerobic activities.  We slalomed, ski jumped, headed balls and a couple of other things I can’t remember. Not that I’m competitive at all but my fella beat my overall high score on the ski jump, so I gotta go back and rectify that soon.  After a while I decided to have a go at something different and found the hoola game….  Basically you’re stood on the Wii fit board thingy facing the telly and wiggling your butt like a maniac, that is until you have to pause and lean to one side to catch another hoop (yes I did manage all 6 hoops spinning at once whoo hooooo!!). Needless to say the others in the room had an interesting spectator sport and were rolling around on the floor in fits of giggles … ahh they may mock but they’ve not managed to unlock the next level of Hoola! I will not be defeated!  Well that’s what I thought until Monday morning. 

Hobbling out of bed and limping my way round Uni all day topped off by my kick boxing session being hampered due to hoola related hip pain was all too much.  It’s day’s like that it really brings home to me how things could be if I’m not careful and if I don’t have the PAO in the next 12 months.  The day of hobbling wasn’t so bad, bit of a pain but bearable, what really got me was kick boxing. Something I really love doing and when possible love launching myself into, part way through the class I had to leave. There was no point in me being there as I couldn’t do kicks with either leg – kicking with the right made the right hip sorer, and kicking with the left meant supporting all my weight on an already sore right side. IT SUCKS,  so frustrating, and I still only have mild discomfort compared to many. 

The rest of the week has been ok hip wise, just a little sore from the weekend shenannagins – I mean Hoola-ing of course!  It makes you wonder though, what’s next? I can’t circuit train anymore, running is out (not that I did much but it’s still off the list), rowing machine is a no-no, clearly Wii Hoola isn’t such a great idea, how many more things are gonna be struck of the list?…….


Questions to ask the consultant re PAO

October 12, 2008

Here’s a few suggestions for when you get to see your consultant – some are really obvious but I needed to have them all written down just to make sure I got the answers I needed;

How mild/severe is my dysplasia? (measurements on x-rays)

Is there any arthritis?

Any damage to cartilage?

Probs with knees – is it likely to be referred from having dodgy hips?

Any other linked probs?  (I have dodgy shoulders too!)

If I don’t have surgery what is likely to happen?

What’s the potential life span of successful surgery?

Am I still likely to need THR in years to come? 

What can I do to increase the chance of 100% success?

One hip done or both? – and what’s the time between the two surgeries

Possibility of returning to sport – kickboxing, swimming, circuits, running, surfing, mountain biking, snowboarding…? What are the restrictions likely to be long term?

How much time to recover?

How long until I can go back to work?

What can I do to help myself short term?

How will it affect me should I want to have children?

Will I set off Airport scanners?!!!

How long do I have to decide whether to go ahead with surgery or not?

Should I go ahead how long (roughly) will I have to wait for surgery?

What will be the difficulties in having surgery away from my home town?

Am I likely to need any special aids at home?

How long until I can shower? 

Are there any exercises I can do while not being able to bear weight?  i.e. use dumbbells do crunches etc.. or will my range of movement be too restricted?

Can you advise on any alternative pain killers?

Will I need a wheelchair?  

Will my own blood be recycled during surgery? 

Will I notice any change in body shape/height?

Screws – to be taken out or left in?

How long after surgery until I can drive?

How long will the surgery take?

How long will I be in hospital for?

Will I have an epidural?

 

Once you find out one piece of info more questions pop up, it’s never ending! Also there’s some things that will depend on you as an individual so the consultant will only be able to give you an approximate answer.  Have a look at other blogs or the hipwomen yahoo group for more ideas of what to ask. 

Incidentally I’ve not done too much physical this weekend but apparently sitting on the sofa and typing now causes my right hip to hurt.  Maybe it was watching Strictly Come Dancing that made it wince at the thought of Salsa-ing again…. one day I’ll be a diva on the dance floor with new shiny bionic hips and there’ll be no stopping me! Well I can live in hope.

 

 

 


Surgery stuff

October 7, 2008

For anyone thinking of having PAO here’s some bits of info I’ve been told or found out. Some of the info has come direct from the consultants at Guys hospital and I’ve heard that there is some variation between surgeons on a couple of things, so don’t take what I say as gospel, it’s only the facts as I know them!

* There’ll be a pre-op appointment around 1 month before surgery – other than taking blood I’ve no idea   what will happen here, soon as I find out you’ll be the first to know!

* Before you’re knocked out you will need to have an epidural (eeeekkkkk!!!! very scary). Apparently there is no way I would be allowed to have the surgery without this as the pain management a couple of days after surgery relies heavily on not being able to feel your leg at all!

* Your own blood can be recycled during surgery – basically they clean your own blood and give it back to you, all part of the service!

* Surgery can take anything from around 3-7 hours.

* There’ll be 3-4 (generally) screws in your joint and these may or may not stay put. Apparently, all being well, mine will be removed around a year after surgery.

* Usually patients are in hospital for around 4-5 days.                                   

* Constipation is the name of the game – so many pain meds and your body going through trauma means some bodily functions get put aside so be prepared with digestion aides!                     

* Before you leave hospital the staff will make sure you can manouver up and down stairs

* You will possibly (me definitely) have to inject with anti-coagulent drugs to keep your circulation going. This will be every day for around 4 weeks.

* Bearing weight (other than toe-touch) is very unwise for the first 6 weeks. This is to avoid bending the screws that are holding the new and improved hip joint together.  There are lots of variations on this time scale, I’ve heard anything between 3-8 weeks surgeon and patient dependent

* Driving is not allowed during non-weight bearing phase – you have to be able to do an emergency stop before you’re allowed behind the wheel and slamming your foot on a pedal really is more than toe-touch!

* I have bilateral dysplasia and will have to wait at least 12 months between surgeries – again this varies from patient to patient and surgeon to surgeon.

I think that’s about all I know at the mo, if anyone can add to this list let me know, and any differences in the info you’ve found out or been told let me know too.  The more you look into hip dysplasia and PAO the more you realise that there’s no hard and fast rules… except that it’s gonna smart a bit!


YIKES!!

October 6, 2008

Just found this on You tube – it’s everything I ever imagined (unfortunately), apart from the bit where the girly gets up and walks only 3 days after surgery – surely no one can look that perky so soon after, maybe it was lots of drugs that helped her. Anywho this is what’s in store for me sometime in the future. http://www.youtube.com/watch?v=5t6RWO8uG-g    I wonder what Jenny is up to now? hopefully hobble free and shopping to her hearts content.


Daily hobbles

October 6, 2008

I got to thinking, what does it mean on a daily basis to have hip dysplasia?  Well for me it’s anything from a mild discomfort to a scratchy soreness and stabbing pains that run down my leg day and night.  For instance over the last couple of weeks I’ve had very little pain or discomfort, only after sitting cross legged on a hard floor does the hobbling begin.  Well that’s until my man and I were shifting radiators around (don’t ask!).  My right hip in particular doesn’t appreciate a flexing action, the rowing machine is now out for this reason, and bending down to pick up a radiator doesn’t seem to be that good for it either. It did give me a whole new sensation though, and no, not a pleasant one. Instead of the usual sharp pain at the front of the joint (which feels like a trapped nerve) I got a cold uncomfortable feeling in the middle of my butt cheek, almost like part of the joint was uncovered and caught a chill. Now that would be some achievement cos my butt cheeks are no where near that insignificant as to let a draught through to my bones, but it does make me wonder what are all the random sensations? what’s actually going on in these dodgy joints of mine? hmmm something else to ponder…..